Thursday, December 27, 2012


Logging another shot.
I hope taking them every two weeks now will help because I'm SOOO tired lately!
Received my letter that I AM and DO meet the requirements of disabled and Ill receive a call from Leah soon...that will be a help and somewhat of a relief. Thank GOD!

Thursday, December 20, 2012

Family Meeting

My daughter thinks we should have a family meeting to discuss my issues because my mom told her how serious things are and she wants to have an option to voice her opinion as well as her brothers.
I agreed to it but I'm NOT doing it till after new Year's because I'm enjoying having her home and spending time with all of them together.
We'll be baking cookies for Christmas Eve and spending the whole day together for Christmas too.
I want to enjoy the holiday without stress, worry and emotions. I don't know what to do next and I don't know if I'm ready to explain or talk about it to my children....
so...Christmas...and...Hakuna Matata!

Tuesday, December 18, 2012


Took my shot. Forgot to post that day but I did NOT forget to take it! LOL
Keeping track here at least helps me remember the dates when I have taken one so I can remember the NEXT one to come.

Tuesday, December 11, 2012

Feel Better

I have three months till next visit to try and lose 10 pounds so I can have a buried tube put in for PD dialysis and then will be ready for it when it is needed or if I crash from sickness and lose my kidneys all of a sudden.
I'm happier knowing that I CAN do PD because I think it will be the least intrusive and easier to manage once I know what I have to do and get everything figured out.
I didn't really realize how much I DON'T want a fistula and hemo dialysis until I was sure that I don't HAVE to have it. WOW!
I hope it is still a long way away from me but I'm ready to face the journey if it is not.
Dialysis will be ok.
I CAN do this!!

From now on Aranesp will be taken every 2 weeks. ;)

Monday, December 10, 2012


Clinic tomorrow morning and as usual I'm worrying and stressing.
I'm not really thrilled with the idea of a fistula and it's the next thing on the list (on the advice of my diabetic nurse)...I don't know what to do, what to decide but I guess I'm going to need to have a chat with the Dr. about all of it. Bite the bullet again and face up to these things that I CANNOT avoid. :(

Wednesday, December 5, 2012


Tired again today.
Done my bloodwork...3 pokes later, and 2 bruises :S bahhhhhhhhh!!!
Hate bloodwork...but the silver lining is I don't pass out at the site of blood and I'm not afraid of needles so it really is no big deal that most of the techs and nurses CAN'T get my blood on the first try. I think this whole ordeal of my life is meant to teach me PATIENCE and most of the time I don't think I'm very good at it. HOWEVER, I will simply endure...not much choice eh? ;)

Monday, December 3, 2012


Having a cold, tired day today.
Trying to get my menu sorted and organized still.
Tomorrow our Santa's Choice order comes so I'll have to see what I can do with it to keep things going well. Idea for a book on living with pkd percolating in my head and maybe a companion cookbook. I'm also contemplating a secondary companion book of kidney/diabetes friendly smoothies. ALL books from the perspective of a person living and struggling with these diseases.
To share the things I've been learning. Then maybe there is some reason and purpose for enduring.