Thursday, December 27, 2012
I hope taking them every two weeks now will help because I'm SOOO tired lately!
Received my letter that I AM and DO meet the requirements of disabled and Ill receive a call from Leah soon...that will be a help and somewhat of a relief. Thank GOD!
Thursday, December 20, 2012
I agreed to it but I'm NOT doing it till after new Year's because I'm enjoying having her home and spending time with all of them together.
We'll be baking cookies for Christmas Eve and spending the whole day together for Christmas too.
I want to enjoy the holiday without stress, worry and emotions. I don't know what to do next and I don't know if I'm ready to explain or talk about it to my children....
Tuesday, December 18, 2012
Tuesday, December 11, 2012
I'm happier knowing that I CAN do PD because I think it will be the least intrusive and easier to manage once I know what I have to do and get everything figured out.
I didn't really realize how much I DON'T want a fistula and hemo dialysis until I was sure that I don't HAVE to have it. WOW!
I hope it is still a long way away from me but I'm ready to face the journey if it is not.
Dialysis will be ok.
I CAN do this!!
From now on Aranesp will be taken every 2 weeks. ;)
Monday, December 10, 2012
I'm not really thrilled with the idea of a fistula and it's the next thing on the list (on the advice of my diabetic nurse)...I don't know what to do, what to decide but I guess I'm going to need to have a chat with the Dr. about all of it. Bite the bullet again and face up to these things that I CANNOT avoid. :(
Wednesday, December 5, 2012
Done my bloodwork...3 pokes later, and 2 bruises :S bahhhhhhhhh!!!
Hate bloodwork...but the silver lining is I don't pass out at the site of blood and I'm not afraid of needles so it really is no big deal that most of the techs and nurses CAN'T get my blood on the first try. I think this whole ordeal of my life is meant to teach me PATIENCE and most of the time I don't think I'm very good at it. HOWEVER, I will simply endure...not much choice eh? ;)
Monday, December 3, 2012
Trying to get my menu sorted and organized still.
Tomorrow our Santa's Choice order comes so I'll have to see what I can do with it to keep things going well. Idea for a book on living with pkd percolating in my head and maybe a companion cookbook. I'm also contemplating a secondary companion book of kidney/diabetes friendly smoothies. ALL books from the perspective of a person living and struggling with these diseases.
To share the things I've been learning. Then maybe there is some reason and purpose for enduring.
Thursday, November 29, 2012
I'm sleepy today. I've been sleepy every day for a week or so now.
I keep needing naps!
Hope its not a bad sign...tho I have been extra busy making Christmas presents so maybe I'm just tired from that! LOL
Friday, November 23, 2012
Tues. afternoon our appt. at disability. Wed. morning an appt. with Dr. to sign my papers.
Thurs. give the Dr. my portion of the papers. All put in envelope and I hope mailed on Fri. like they told me it would be. And NOW I wait to see if I am going to get help.
I HOPE it is a yes and it doesn't take 6 months like they say it can.
I have had a lot of stress and I'm hoping it is done for awhile now! I napped almost every day this week! I've also had headaches a lot. :(
Trying not to worry and just to accept that what will be, will be but I worry.
So I take a deep breath. AND I believe.
Tuesday, November 20, 2012
NEXT make appt. with Dr. and get him to sign my medical portion of application.
Calling tomorrow. Hopefully, can get in soon and get this DONE and in the works!
Sunday, November 18, 2012
I've only been waiting two and a half months now. :S
I didn't want to even do it. I tried to avoid it as long as possible but, the facts are the facts.
I need help.
So, cross fingers the appt. goes well and everything goes forward for me to receive disability help.
My medications just get more and more added trying to keep me in line and more and more expensive. Also, more dosages of insulin, and sooner or later I will also have to deal with dialysis of some sort.
I am trying hard not to be scared and worry about what's coming later.
What will be, will be.
I will face my decisions when they come and in the meantime try to stay positive and keep working on the things that I CAN do. No matter how difficult, no matter how frustrating, no matter how depressing, no matter whether or not I want to give up or not....just KEEP ON!
Thursday, November 8, 2012
Thursday, November 1, 2012
We're still not caught up. I HAVE applied for disability and I'm waiting for an appointment so I can
actually send the information and get my doctor to sign for me.
If I don't get my appointment soon I have an appointment next week with a social worker who will advocate for me and try to hurry the process.
It was hard enough to admit and accept and ASK for help in the first place and what I get is hassle and SLOW process? I'm frustrated for sure. I NEED the help and if I don't get it before hubby gets laid off for the year I won't get it at all. :(
At least I know my diabetic nurse can help me with insulin in case of emergency. Thank GOD for that!
I DON'T want to know what happens when I stop taking it!!
Anyway, from now on I'm just going to keep track of what I'm eating no matter how crappy it is.
I will do the best I can and n the meantime hope for better than this.
Thursday, October 18, 2012
"It is always good to try something new even if you don't keep up with it because every new thing expands your knowledge base."
How I did it: We started a Tai Chi class. I was interested and so we decided to try it but I was not LOVING it so gave it up. If it is not something I LOVE then I know I am not going to commit or keep doing it over the long term.
It took me 25 days.
It made me
Friday, October 12, 2012
"I learned to try one or two new things a week and stick with well known things the rest of the time."
How I did it: It is difficult to change an entire lifestyle and takes TIME. I just searched out recipes to try and committed to trying one or two of them a week. Many times I didn't like them but I also found many awesome cook-again recipes that we ALL loved!
Lessons & tips: Start small and work up to the fancier, more difficult recipes. Added stress is not helpful in the long run.
It took me 30 days.
It made me frustrated
"I realized how much I miss reading a good story and how inspired I am by them!"
How I did it: Decided at the times when I was not feeling well or had no energy to spend that it would become a reading day. In this way I get the rest I need and I catch up on some good stories!
It took me 30 days.
It made me happy
Wednesday, September 12, 2012
Tuesday, September 11, 2012
Things to work on, both good and bad. Sugars are better...keep it up.
Potassium is high. Try to keep under 3000mg per day intake and will improve.
Also keep sodium under 1500mg per day.
Otherwise keep doing what I'm doing.
Stress.Up and down, back and forth...yoyo!!
Thursday, September 6, 2012
Wednesday, August 29, 2012
I'm trying to get better about this but generally managing my menu is an ongoing process and not yet a weekly HABIT.
SO...I'll get a proper menu planned as soon as I can and get back on track.
This week I have been bad though because I've made french fries (which I LOVE and cannot give up so often crave) and my son and I made Jello chocolate pudding and chocolate chip cookies (which really is a rarity around here because even though I LOVE cookies I rarely make them OR even buy them. Except maybe for arrowroot cookies or tea biscuits sometimes.
My real problem is SALT! :( but I AM working on these issues.
EVERY new day is another day to do better!
Saturday, August 18, 2012
Thursday, August 16, 2012
Monday, August 13, 2012
- Sun.- Lasagna and Garlic Bread
(not the best choice for me but sometimes I have to please the boys too!)
- Mon.- Lemon Garlic Tilapia, Asian Salad, Roasted Veggies
- Tues.- Apple Pork Chops and Stuffing (Davita recipe), Rice and Salad
- Wed.- Healthy Ground Chicken Meatloaf, Mashed Potatoes and Gravy (for the boys) and Green Beans
- Thurs.- leftovers
- Fri.- dinner OUT! (our summer treat...maybe Chinese this week)
- Sat.- Eggplant Spicy Sausage Stew
Saturday, August 11, 2012
I will be making this week's menu shortly!
Thursday, July 26, 2012
Had to wash out a mayo bottle to hold the needle until I can take back to clinic and have them dispose of it. But it's not that bad.
I guess I just have to do what I have to do to help my body function.
Keep on keepin' on!!
Wednesday, July 25, 2012
Mon.~ salad...too hot for food (32 degrees C)
Tues.~ turkey burgers (mine with relish and lettuce)
Wed.~ tortellini meatball soup (delicious!)
Thurs.~ leftovers of whatever is in fridge ;)
Fri.~ OUT! (sometimes bad, sometimes salad)
Sat.~ BBQ with Angie and Dave
Lunches~ BAD...french fries, McDonald's
(NOT a usual week but took my kid out twice this week-SUMMER!), also crackers, cheese and salami, salads
Snacks~ crackers, cheese curds, salami, fruit (fresh and smoothies)
Tuesday, July 10, 2012
How on earth I am ever going to remember:
- Parting the Wild Horse's Mane
- Playing the Guitar
- Repulse Monkey
- Hold the Ball
- Grasp the Bird's Tail
- Cloud Hands
- Carry Tiger Over the Mountain
- Snake Creeps Through the Grass
- turns and other various movements!
Friday, July 6, 2012
My gout meds have been lowered again so I MUST keep on track with fluid intake or that is going to HURT me...
I have a NEW Dr. he seems pleasant and competent but now I'll have to get used to him!
My creatinine is high and my kidney function has dropped again...when this started I was at 37% I believe and now I am at 22%...no wonder I get tired so fast!
What worries me quite a lot is that at 15% usually it's time for dialysis. :(
Yesterday I was in shock and VERY blue and distressed but today I am trying to remember that i DID lose 5 pounds so the diet changes and beginning exercises ARE working even if it is SLOW.
So I MUST and WILL keep on trying to eat right and get more active and keep dialysis at bay for as long as possible.
I want to TRAVEL! So I better get my butt in gear and make that happen SOON!!
Thursday, June 7, 2012
I've been drinking water, water, water...and tea, tea, tea since yesterday.
Still hurt but since it was BOTH feet this morning and one seems better than the other now I guess I just have to KEEP drinking!!!!
I have gotten a whole bunch of writing and pages done the past two days though.
I guess there is some productivity to be had when you're laid up in bed resting with your feet up, waiting for the pain to get lost!! ;)
I'll be alright!
Tuesday, May 15, 2012
It doesn't always work because I'm frustrated and close to the edge sometimes but I am TRYING.
I AM fighting and HOPING and that is all I can do.
Monday, April 30, 2012
Been in the bed for 3 days with another bought of gout foot...let's face it my feet have not been the same since the full on attack I had back in Dec. but I am pretty sure the problem with me us dehydration for the most part. I need to DRINK more! I've been drinking water, herbal teas and eating grapes for 2 days now and a LOT and it definitely has improved the foot pain.
I have been checking my sugars as well and they are a little higher than usual so I'm concerned.
Next time...I'll be told I must take meal time insulin 4 times a day...this is NOT going to work for me and I'm VERY likely to end up hurting myself!
Friday, April 20, 2012
However, I KEEP trying to get it right!
More chicken and fish, less red meat...more fruits and veggies, less cheese....more water, NO caffeine...HARD HARD HARD!!!!
I won't give up because I need to FIGHT every day to be stronger and healthier in as many ways as possible!! Mentally, emotionally and physically!
NEVER GIVE UP!
Thursday, April 12, 2012
I'm trying to drink more water and I'm trying to eat fruit and veggies but it's such a long slow process and I get frustrated and give up. :(
It is so HARD to make all these changes!
I have to keep trying tho...giving up is NOT an option!
Tuesday, April 3, 2012
Still need to make an appt. to go to Diabetic Clinic and soon enough it'll be Kidney Care Clinic again...
I dunno....trying to eat and exercise and having a difficult time. Baby steps, one day at a time...doing my best...
Friday, March 23, 2012
I am tired, tired now and I'm heading to bed but the positive is that I DID get some good exercise today!! ;)
Thursday, March 22, 2012
Wednesday, March 7, 2012
If not and/or it doesn't work then I may have to take more insulin 4x a day. I really don't want that!
Otherwise my daily sugars were pretty good...well as many as I had to show...MUST get better at tracking them!
Monday, March 5, 2012
I don't mind the lemon water at all.
So far I'm managing about 6 glasses of water a day tho I am trying for 8 but I can't quite seem to get there. :(
Also worrying myself because for the last three or four days now my feet have been swelling. It is less than it was the first day but still it feels very uncomfortable and has me a bit stressed and worried.
Thankfully I will see the Dr. tomorrow and see what's going to happen next.
Otherwise I have been searching out quotes today and trying to keep myself hopeful.
I am a worrywart so learning NOT to stress myself is very difficult sometimes. I think I am getting better at it but yikes!!
Saturday, March 3, 2012
Supposedly it is very healthy so for awhile it will be my morning drink.
I have given up coffee except once in awhile and I'm trying to only drink decaf or herbal teas.
I also had green tea with lemon at lunch time and either way is acceptable and not gross at all lol!
Hopefully it will help me to know how much or how little of needed nutrients I am getting every day and my health care team will appreciate having a record that we can find target areas to work on and do better next time!!
Friday, March 2, 2012
Keeping track will be good for my health care team as well as myself so here begins my concerted effort at keeping on top of all that I must learn to master in order to stay as healthy as I can for as long as I can.
Wish me luck! I NEED it!!